Here is a quick update on the things that have been happening in the last month.
1st and most important!
Words cannot express my gratitude and the gratitude of my husband and children towards the generosity of our family and friends. God has put the gift of giving upon your hearts and I know that through His Grace, all that we need, will be provided. God’s timing is not always our timing, but if we pray, He will be there. Many of you gave to my medical fund and I was unable to thank you personally, so I wanted to let you know that we do thank you and I pray for all of my friends and familyeveryday. I believe that God is working through me and will heal me, so that I can be an inspiration to many who suffer from auto-immune diseases and all the others whose lives I hope to touch. During the season we celebrate Christ’s birth, please know that my family wishes you good health, peace, love, family and most of all Hope when sometimes it seems there is none. If you need any special prayers in confidence please know I am happy to do that for anyone. Thank you all again for your generosity. PS - so far with all of the fund raising we have over $15,000 in our medical account!
My Schedule so far:
Jan 3 - Dan and I both are flying to Chicago. I am so thankful he is able to come for the 1st week!
Jan 4-6 Much testing and appt. with Dr. Burt
Jan 9-12 More Drs. to see:)
Jan 13 Placement of PICC Line
Jan 16 Mobilization/Chemo - overnight stay at hospital
Jan 17-25 Watching my counts and taking some shots
Jan 19-22 Lil Berry will be staying with me.
Jan 23-28 Tanya Mihailov will be staying with me and flying home with me.
Jan 26 Stem Cell harvest from my blood
Jan 28 Fly home
Feb 8 Fly back to Chicago (My friend Janice will be accompanying me till 13th)
Feb 9-13 Chemotherapy
Feb 14 Transplant (Valentines Day- ain't that sweet)
Feb 15-19 Recovering in hospital (My sister Lynda will be flying in from South Dakota for the duration)
Feb 20-29 Recovering in Chicago close to the hospital
March 1 - Home Sweet Home
Thursday, December 22, 2011
Monday, November 7, 2011
Let the Journey Begin!
I am very excited to announce that I will be leaving for Chicago to undergo Stem Cell Replacement Therapy at Northwestern University on January 3, 2012. I believe that this will arrest my Scleroderma and allow me to begin to live my life again. If you don't know much about Scleroderma you can go to http://www.sclerodermafoundation.org/ . It has been a long 4 years but through my faith and belief that God has a plan for me, I know that this procedure will be successful. I will use this blog to update family and friends as to my progress. I know not everyone uses the computer but hopefully this will at least reach most of you. Please feel free to pass the Blog along to those that I may not have email addresses for. I will attempt to give a brief schedule of my upcoming trip.
January 3, 2012 Fly to Chicago
January 4, 2012- January 12, 2012 Begin extensive testing to make sure my heart and body are strong enough for the procedure. This will include many tests like a Cardiac Cath and MRI of the Heart. Though I have already had preliminary testing, I must still have the extensive tests. I know they will all turn out great so I am not worried about not being able to undergo the treatment.
January 13 Line placement for Chemotherapy
January 16 Chemotherapy 1 Day to release Stem Cells into my blood
January 17 - 26 Some daily shots and Laboratory Testing - My friend Tanya will be there to help:)
January 27 Harvesting of the stem cells from MY blood.
January 28 Fly home with Tanya and be home for 10 days.
February 8 Fly back to Chicago
February 9- ??? begin 5 days Chemotherapy and in the hospital until my stem cells are given back to me and my blood counts come up enough for me to come home. During this time Danny will be with me and also hopefully my sister Lynda. If you are interested in coming to Chicago let me know and i will tell you the approximate best time. Remember its COLD there and I will be in the hospital and some of the time I will be in complete isolation. I really don't have many details but as I get them I will post them in this blog.
Yes I will come home bald:) I will try and have some form of communication like Skype. Salome will stay with my kids but they may need some help with rides etc.
My request from each and everyone would be that you pray for my family, that we are strong and use our faith in God to guide us through this difficult time!
Through Faith in Jesus Christ!
January 3, 2012 Fly to Chicago
January 4, 2012- January 12, 2012 Begin extensive testing to make sure my heart and body are strong enough for the procedure. This will include many tests like a Cardiac Cath and MRI of the Heart. Though I have already had preliminary testing, I must still have the extensive tests. I know they will all turn out great so I am not worried about not being able to undergo the treatment.
January 13 Line placement for Chemotherapy
January 16 Chemotherapy 1 Day to release Stem Cells into my blood
January 17 - 26 Some daily shots and Laboratory Testing - My friend Tanya will be there to help:)
January 27 Harvesting of the stem cells from MY blood.
January 28 Fly home with Tanya and be home for 10 days.
February 8 Fly back to Chicago
February 9- ??? begin 5 days Chemotherapy and in the hospital until my stem cells are given back to me and my blood counts come up enough for me to come home. During this time Danny will be with me and also hopefully my sister Lynda. If you are interested in coming to Chicago let me know and i will tell you the approximate best time. Remember its COLD there and I will be in the hospital and some of the time I will be in complete isolation. I really don't have many details but as I get them I will post them in this blog.
Yes I will come home bald:) I will try and have some form of communication like Skype. Salome will stay with my kids but they may need some help with rides etc.
My request from each and everyone would be that you pray for my family, that we are strong and use our faith in God to guide us through this difficult time!
Through Faith in Jesus Christ!
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